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Energy Conservation Intervention

 

B. Miller, B. Forman, A. Townson, S. Forwell, B.
Energy Conservation Intervention for Fatigue in Spinal Cord Injury (2007)
 
To partner with the peer support program of the British Columbia Paraplegic Association (BCPA) in order to develop an energy conservation intervention for fatigue suitable for the Spinal Cord Injury (SCI) population and led by a facilitation leadership pair (an occupational therapist and a person with SCI).

 

Workshop Report
The participants identified 10 components what they believed would constitute a helpful fatigue management programme that was not available in existing programs that were reviewed.
 
The dimensions of a ‘successful’ outcome reflected quality of life concerns: enabling people with SCI to do the things they value, enhancing their sense of control over their lives, reducing pain and helplessness, increasing motivation, and enhancing relationships strained by fatigue.
 
An unexpected finding was that a management programme targeted at fatigue is a necessary but incomplete response to the issues that were raised during the workshop. We have also identified the need to address much broader issues impacting quality of life.
 
We remain committed to developing a programme that directly addresses fatigue, and thus have successfully obtained a $5000 internal grant (UBC Faculty of Medicine) in order to develop a new SCI oriented energy management program. Moreover, we are in the process of submitting a proposal to the SCI Solutions Network Rapid Response Award competition in order to assess the virtues of this program using a mix methods approach.
We also have been in touch with a group of researchers sponsored by the Ontario Neuro-trauma Foundation in order to develop a more comprehensive self-management programme that will address broader quality of life issues that were identified in our workshop.
 
In sum, all of our workshop specific goals were attained. We have provided our participant’s with summary reports of the information that arose from our workshop. Our community partners (BCPA) remain as integral team members
in the aforementioned grant applications and efforts. Finally, 3 peer reviewed
papers have arisen from this work; 1 in print and 2 submitted.
 
Thank-you to the DHRN for facilitating this workshop which has lead to a new and vibrant programme of research. – Bill Miller


 Source: Report to DHRN